So folks, with many a glitter cannon and a triumphant trumpet fanfare, I have tried to start to write (reasonable helpfully) about chemo.
Turns out I can only do it in small chunks, not sure how many it will turn in to, lets hope it’s more informative / fun to read than actual chemo.
Chemo Disclaimer: If you are about to undertake Chemo perhaps have someone vet this blog post before you read it.
Actually, that’s Tip Number 1: Get yourself a buffer / learn to zone out!
Everyone has an opinion / war-wound / great Aunt Sue when it comes to Cancer and Chemo.
If one more person, who had never been through Chemo, told me “Ginger might help” I may have inflicted damage. Learn to tune people out, you are about to receive a lot of unsolicited advice. Most will not be helpful, some will be scary; the Kings and Queens of Yore had their food tasters, get yourself an advice taster. A trusted loved one to vet / veto information. Let them help you to decide if you need this particular titbit in your head right now. If a conversation has taken a turn towards scary-ville, don’t be afraid to cut people off (politely). I wish I’d been more brave about that in the beginning.
So perhaps don’t read this, at least not yet.
Tip Number 2: Get yourself a sponsor.
We all need advice sometimes or the shoulder of someone who has been there. Sadly in this day and age you probably already know a few, a Chemo sponsor if you will; the right person is the one who, on receiving the news of your up coming treatment, will respond by giving you a hug and nothing more.
This is your guy, a warrior with all the scars and the world-weary eyes but someone who knows when to keep their mouth shut. They know you need to experience it yourself first, they know not to taint you with stories of their own battles. The amount of self control this individual will be exercising ought to be saluted, trust me.
Once you are through your first treatment and need to debrief with a comrade; this is the person you call, meet for tea or something stronger, strip off your shirts (metaphorically) and have at it with the battle-wound talk.
Tip Number 3: At some point along the path you or your body will not react in a ‘normal’ way. (This is what makes all the guidelines on Chemo so aggravatingly vague, like snowflakes, we are all unique. It’s the last thing you’ll feel like doing but try to relax and go with the very weird flow. If you are worried ring your Doctor, 9 times out of 10 they will tell you whatever it is is normal or “normal for you”.)
I’ve been trying to think if I’ve ever been more nervous/terrified than the morning of my first Chemo session. Having never jumped off a cliff, blinded folded – nope, nothing is coming to me. I think it officially the most twitchy I’ve ever been.
The day before I had to take steroids to prepare myself, I then spent the day in nervous anticipation of when I was going to start feeling all manic and jumpy, which is apparently what’s meant to happen, my Mum would clean the house at top speed while on steroids. Sadly for little flat and the ever neat A. this NEVER happened.
Turns out I’m part sloth so I was mostly just sleepy (which my Doctors found quite funny), my skin felt a bit buzzy too, if that makes sense. You know when you’re on a hot tube/subway/metro and then all of a sudden a blast of cool air hits you and whooshes round your skin? A bit like that crossed with ants running up and down your legs; which is my least favourite touch sensation. It was unsettling, is what it was.
Tip Number 4: Request a PICC Line.
I also had a line fitted the day before, I hated every moment with that darn thing in me. It was not a pleasant experience having it put in and it was a pain in the patoot in every possible way BUT I think it’s a necessary evil. I am grateful my Dad knew enough to request one for me. It makes things easier on Chemo days and protects your veins from a powerful chemical battering. Which is super important.
Perhaps have it put in a few days before the first Chemo so you can get used to it. I wanted to swim as much as I could prior to Chemo so the day before made sense but I did have to deal with an achey arm on top of everything else.
Top Number 5: Let yourself off the hook, you have enough going on.
After my first not very pleasant Chemo experience, I spent sometime beating myself up. Had I scared myself into a nasty experience by reading too much? Had I forgotten to be positive? Had I done or not done something, ANYTHING to make this whole thing harder on myself?
I’m going to tell you a secret that may keep you a little saner than me. Commit it to memory and when the dragons come try and remember to repeat it.
There are no winners or losers in Chemo. No matter what the books, experts or your neighbour Ned says; it is going to be what it is going to be and you know what? You are going to do your very best in a very crappy situation.
We can dance about this issue all we want but NOBODY has ever come out of Chemo saying “I quite enjoyed that, can I go again?”, this is no trip to the Spa. By submitting yourself to it you are already a Rock Star in my eyes.